Here’s my story of how I dramatically reduced my lower leg lymphedema with natural methods.
But first, a little background.
My previous experience with medical advice
In my late 20s, I started having severe gallbladder attacks out of nowhere. When I went to see doctors, they were surprised since I didn’t have any of the classic risk factors for gallstones or gallbladder disease. No one could tell me why I had this problem, so I could address the underlying cause. Instead they all told me there was nothing I could do and I had no choice but to just “cut it out”. Everything I read echoed that same message. Surely something caused my gallbladder to have problems…couldn’t there be a way to solve the underlying problem?
Wanting to avoid surgery, I tried everything I could think of to resolve this situation. This was before the internet, so it wasn’t easy. Turns out, after extensive trial and error, a combination of acupuncture, supplements and a low-fat vegan diet did the trick. I ended up keeping my gallbladder and still have it today, almost 30 years later. I was able to successfully defy all the MDs who told me “I had no choice” and there was “nothing I could do”. Now, decades later, people routinely control this condition with a low fat diet and chinese medicine, but it wasn’t widely known then.
So I take the generally accepted Western medical wisdom that there’s “nothing you can do” with a grain of salt. Western medicine is amazing and can do wonderful things, and we need it at times, but there’s always new things to be discovered. Especially with natural remedies, there’s no funding for research. So answers may be out there and just not discovered…yet.
My path with lymphedema
I had a similar experience with lymphedema. I’d had it for about 15 years without knowing what it was, I just knew I had one leg that swelled and became bigger than the other. But for the most part it stayed mild and I just lived with it, as it didn’t seem to progress. It was irritating to feel liquid and swelling, but the doctors I did see didn’t know what it was and said not to worry.
But in my 40s, after a long distance economy flight, it got far worse. I sought help again for the increasing swelling. It was then that I found out the name for this condition and quickly received all the scary news (“incurable”, “progressive)”. After reading everything I could on the subject, I freaked out. There was nothing out there hopeful that I could find…just a lifetime of compression socks, a lot of “don’ts” and those very scary pictures.
Suddenly I also had this long daily “to do” list to stop it from advancing: elevate, put on compression stockings, exercise, elevate after, dry brushing, walk for an hour, swim if I can, self-massage, elevate again at night. This was like another full time job! I went for the three day lymphatic massage series, which reduced it back to normal, but all it took was 2 hours in the car a few days later and it was back to where it started. This was getting even more depressing. Even yoga, which is one of my favorite stress managers, was no longer possible for more than a few minutes at a time as it triggered swelling.
I couldn’t accept that was going to be my fate, so I dedicated myself full time to research everything I could find. I was in the process of starting a new business so I was able to put that on hold and do this intensively for about six weeks. I literally got up in the morning and started researching and continued all day, for several weeks. I went to the library on many occasions. I tracked down medical journal articles. As the lymphedema continued to advance, I became more determined. It was just too depressing to consider that it wouldn’t work.
I tried everything. I knew that if I didn’t and the lymphedema worsened, I could never forgive myself for not making the effort. (Yes I realize this is not necessarily healthy either, but this is how I am. ) And in fact as it appeared to be a tough opponent, I downgraded my goal: now, I just wanted to get it back to where it was before (so noticeably decrease it). That way, I reasoned, it would be so mild that I wouldn’t notice (like it was at the beginning), and I could just be extra vigilant about activity and health.
So, on went the experiment, with more money and time invested: I went to two different acupuncturists for consultations and treatments, since acupuncture was one of the things that had helped me in the past. No results. I researched and tried numerous supplements and herbal remedies that were supposed to help cleanse or strengthen the lymphatic system. No results. I tried various diet tweaks including elimination diets, added green smoothies, bought a juicer, you name it. I tried every supplement that I could find with any link to lymphedema or venous health, since there are several in use in Europe. No results. Even more depressing.
More time went on. I tried the hula hoop. Rebounder. Laser treatments. A funky machine that is supposed to increase leg circulation. Nothing. Nothing. Nothing. Nothing. While some of these may very well have been helping, nothing was noticeable.
Upgrading my diet
But I kept improving my diet. I made sure to eat as many green veggies as I could, in any form. I made it a must to eat green veggies at every meal, even if it was just a small amount (some broccoli sprouts or some baby spinach leaves, for example). Especially broccoli, since there is some evidence it can speed repair and prevent damage to DNA. In warmer weather, I would drink green smoothies at breakfast. In cooler weather, I would make a green soup that I would eat every morning.
I read that hot liquids and beets help detoxify the lymphatic system. I would drink a shot of beet juice every morning and drink hot tea or water all day.
Also in my reading I learned how the lymphatic system can be polluted with things that are absorbed through our skin. Since my lymphatic system was already compromised, I decided I would remove any and all toxins. I ordered natural soaps, lotions etc. and stopped using things on my skin that had preservatives. Usually I just used shea or olive oil soap and then used jojoba oil for moisturizer. My skin looked great, that was a nice surprise.
While the diet stuff and the detox was not helping the lymphedema, I was feeling and looking great. Maybe it paved the way for my results? I can’t be sure, but these are all great habits to support your body in getting healthier.
Traditional chinese medicine to the rescue
Eventually I stumbled on to some information far in the back pages of google about chinese medicine and lymphedema. I found a gentleman who had treated this before. As can often happen with chinese medicine, the communication was not that good. It was very expensive, and I was very skeptical, but I knew I could not forgive myself if I did not try everything.
So I started taking the expensive herbs every day in the morning, and went for (inexpensive) tui na massage every week or two.
The tui na made sense, as it is very deep massage designed to break up scar tissue. The theory is that if your lymphatic system is already compromised, you need to get what you have left of it working at 100%. Apparently scar tissue in the body can create blockages. And this very aggressive massage clears them out.
Nothing really happened for the first few months. I continued to be skeptical but hopeful, as I felt my options were running out.
At month four, however…something amazing happened. The swelling dropped noticeably. Then it continued to drop for several weeks. At that point I didn’t have to wear compression socks any longer, it made no difference. Nothing swelled after exercising so I didn’t have to elevate immediately. Miraculously, every morning I awoke to see two normal looking legs! It was amazing. While I would get some swelling during the day, it seemed different (on the sides of my calves only, instead of the back) and it resolved itself each night when I slept. No compression socks, no self-massage, no elevation. I could still feel some swelling, especially after sitting at a desk too long, but I felt that I had my previous life back.
I continued to go for this treatment which by now had gotten quite expensive. The results had leveled out. I ended up going for a year and a half, but maybe six months treatment was all that I needed? Either way, it was diminishing returns at this point. I also was curious how long the results would stick.
The good news: I stayed without problems for about a year and a half after that (so I had relief for about 2 1/2 years). Just recently, my legs started swelling a bit again. So I’m going to start the chinese herbs and have already found a nearby tui na provider. I’m hoping that if I do this longer this time, and from this much better starting point, I can achieve a longer result. Regardless, I’d rather do these herbs any day for a few months every few years to buy relief. (It’s probably a wash anyway when you consider the cost of the compression and the MLD therapy). But I’m hoping that a longer course might yield more lasting results.
But this has been life-changing for me. It is truly priceless to have freedom from this dire condition.
I know I’m not alone in fighting lymphedema and many of you have probably experimented on your own as well. That’s why I started this website. My goal is to have a central place we can share information and most importantly keep us all hopeful.
I also understand I am dealing with mild lymphedema (even though I’ve had it quite a long time). You may be dealing with something far more advanced. But what if you can get a big reduction? I’m hoping it is all relative and everyone can get some results.
I look forward to hearing about more people’s experience so we can share and learn from each other. I’m hoping to continue building out this website and adding a directory of chinese medicine practitioners who have experience treating this condition, so this treatment will be easier to find.
For more details on what I tried that I believe contributed to this result, please see my resources page.
I commented on your other page as well. currently trying TCM but no tu nai massage. I’ll look I to that. Do you need to select carefully so they don’t do damage?
On the tui na, I don’t believe it caused me any damage as my legs are far better now than they were before I had all of that massage. Unfortunately I also don’t know how much this helped as I did it together with the herbs. The gentleman I was working with then recommended them together. I would be curious to know what your doctor thinks about it if he or she has both eastern and western training. My swelling would drop immediately after the massages however so it seemed to be helping. The massage was full body however, with most of the work done on the back, etc. so it wasn’t focused just on the areas I get swelling. The therapist said I had alot of scar tissue that was blocking the lymphatic system.
Great post .. would love to know which books or reads helped out !!! Thank you
I will ask him. He is Chinese and appears to be in his 70s with a lot of experience. He cured my friend’s son’s peanut allergies! It took a full year but he was recently tested and the allergy is completely gone. He also cured her rheumatoid arthritis and some other things.
This doctor says in China they treat lymphedema regularly. He says he has treated patients with success. More success with primary than if someone had nodes removed. My case sounds like yours somewhat mild relatively speaking. But at the same time compared to my former “completely normal “ body it feels awful! Affects my legs and hands. He says it’s curculation and dampness. So far no change but again, only been 6 weeks. He altered my herbs once already. He’s not pushing acupuncture which is good. He is reputable and his office is always busy and my friend is a testimony.
Enjoyed this educational post on lympedema! I am experiencing mild for the first time @ age 70 and its painful!
As a nurse for 18 years i wore compression hose and good shoes to keep me frim getting back injuries but in my 18 years ive gained 40 lbs – ugh.
I am now conscientiously working on removing the 40 lbs eating clean and green but this leg issue has kept me from moving like i use too.
I will consider an herb garden and introducing herbs into my diet, madsage tgerapy and let you know how it all works.
Thanks again …be safe ve well.
Thanks for reading and commenting Mary. Glad to hear it and best of luck, and yes please do keep us updated.
What Chinese herbs did you use?
Hi Alyssa,
With chinese medicine, you need to go to see a chinese medicine doctor and they will prescribe a mixture of herbs that fits your needs. Usually I get a blend of over 10. So its not something you could replicate on your own, its a process of seeing the doctor, getting the herbs, then returning maybe once a month for a new herb formulation. This blog explains the process a bit more:
https://fightlymphedema.com/lymphedema-treatment-chinese-medicine/
Hope that helps. Thanks for reading!
I have hope now. THANK YOU❗❗
I live in the Bay Area in California and I’m sure I will find a Chinese doctor/herbalist. BUT, would know of one you could recommend.
I HAVE HOPE, HOPE HOPE ♂️♂️♂️♂️♀️♀️♂️
Hi Jan! Thanks again for reading and thank you for the lovely comments. That makes me very happy :)….TCM gave me hope too when I was utterly depressed that I would have to deal with this so called “incurable, progressive condition” for the rest of my life. I unfortunately don’t know of any TCM docs up there, but that’s obviously a prime area so I’m sure there’s some great ones around. I would recommend using Yelp. I have used that before, and I would highly recommend looking for people with alot of good reviews (and obviously none, or very few bad reviews). Seems like Yelp has few fake reviews but look out for those. But I think if someone has gone the extra mile many of us will take the time to write one of those really good reviews. On the other hand, I’d avoid people with no reviews or very few reviews that say anything specific. That may mean they don’t really get good results for people, but if they are nice and trying no one wants to leave a bad review, so they don’t say anything. There’s no science there, that’s purely my acme-home-sociologist observation, but hopefully it helps 🙂 I always email or call around first anyway to see if they have any experience treating lymphedema or if not, at least regular edema, and look to see if they are open to researching lymphedema to see if that can help. It’s definitely a tougher thing to treat, so doing a bit of research up front can help. Remember to give it time too, it’s not instant, but you should start feeling better in general to know if its going in the right direction. Good luck and please let us know how it goes!
Hi, thanks for your article! My Dad recently had a great amount of swelling gone from lymphedemia as well from Chinese herbs from a American TCM doctor/herbalist. So grateful! And it takes good personal health care as well.
Thanks for your comment Nou. That’s great news for your dad–glad to hear it!
The herbs that you mentioned, are they consumed in a capsule format or tea? I have LE as well, and went to a TCM doctor who prescribed me a mixture of herbs in a tea form.
Could you please share the combination of herbs used? I think this will be helpful for all of us with LE To take back to our doctors.
Could you post the name of the TCM doctor you saw so that perhaps we can consult with him/her and order the herbs via him/her?
Thank you so much!
Hi Alexis,
With the first doctor I used several years ago, the herbs were in liquid form, in pouches. With the doctor I’m currently working with, the herbs are in a powdered, freeze dried form where I just stir in water and drink. I find the powder more convenient and far less expensive, easy for travel, plus the pouches all were individual so I didn’t like that it used so much plastic. But I think alot depends upon the doctor you choose and what they provide. I do know that it seems necessary to take high quantities so capsules would be difficult.
As far as the formulation, it is like 13 different herbs and usually changes every month or so when you are getting treatment. I don’t have the list here since I am travelling and it does change dramatically so not sure how helpful it will be. Plus I know that the herbs treat other conditions so they will be different for everyone. I do know that for me, ginseng was an important part of the formula and I have found some technical information that shows that it is being investigated for treating lymphatic issues: https://www.ncbi.nlm.nih.gov/pubmed/27333960.
I do have an interview posted with the doctor I am using now, so feel free to contact him. I find him very easy to work with and he’s a great communicator which is good. Although ideal world I do think its better to see someone face to face, otherwise there might be a bit of trial and error along the way. But I have had great results with remote treatment too. Here’s an interview I did with him: https://fightlymphedema.com/interview-chinese-medicine-lymphedema1/ and you can find him on line, he’s located in Thousand Oaks, California. Hope that helps. Thanks for writing!
Jeanne! Thank you so very much for responding. I have been to all highly regarded clinics in the country and have always returned with no answers. This is why I started researching alternative methods of treating LE. Thanks again for sharing the information. I will hive Dr. Lee a call and see how he can help me remotely. I appreciate it very much.
Is your LE in both legs or just one?
Best,
Alexis
Hello,I have the same problem of lymphedema both legs,,how can I get access of the Chinese medicine??
Hello Deborah, Thanks for reading. There’s several blogs that help describe the process of finding and working with a chinese medicine doctor or practitioner. Here’s a few, and you can also browse the blog section to find other articles. Best of luck!
https://fightlymphedema.com/how-to-get-chinese-herbs-to-treat-lymphedema/
https://fightlymphedema.com/lymphedema-treatment-chinese-medicine/
https://fightlymphedema.com/lymphedema-surgery-should-you-try-chinese-herbs-first/
https://fightlymphedema.com/taking-chinese-herbs-lymphedemachinese-herbs-for-lymphedema/
Hi Jeanna
I myself looking for a solution for my wife’s lipedema
Can you provide me the details of your Chinese doctor (the first one with the herbs) I will really appreciate that
She suffered a lot and no Chinese doctor manage to help her (and we tried a lot )
I prefer the first because from my understanding the first results is the hardest
Thank you again for sharing your story that gave hope…
Hi Jonathan,
So very sorry, I didn’t see your comment until just now!!! Sorry! Here’s the doctors I have used, both in California. The first TCM person I used was Charles Kwang in Los Angeles. https://kwangwellness.com/. The doctor I’ve used most recently who has helped me maintain the results is David Lee. https://www.davidleeacupuncture.com/. Both have experience helping with lymphedema. I agree that is so important, I saw others first and got zero results, very frustrating. Sorry you and your wife are dealing with it and hope this helps! Keep us updated!
Hi! Who did you receive Tui Na massage treatments from, and what is their contact info please? Was Dr. David Lee the same acupuncturist you used initially for the Chinese herbs? Was the lymphedema you experienced similar in appearance to lipedema? https://www.lipedema.org Have you tried Lymphatic Yoga? Thank you for the wonderful information!
Hello, here’s that info. The first TCM person I used was Charles Kwang in Los Angeles. He has a wonderful Tui Na therapist named Shen, or at least Shen was there as the last time I saw him which has been a few years ago. https://kwangwellness.com/. The doctor I’ve used most recently who has helped me maintain the results is David Lee. https://www.davidleeacupuncture.com/. No, my lyphedema is pretty straightforward, swelling in left leg and occasionally it goes to the right, but just swelling. No I have not tried lymphatic yoga—but love yoga and it definitely helps me. If you have any info on this particular style I”d love to see it!!! Thanks!
Hello I have the same condition and have decided to try cure myself the natural way and have been looking at many herbs …… u said u tried many herbal remedies that u researched can u elaborate on that more please because supplements are artificial and I would like to understand dud u mix your own natural herbs or over counter remedies ….because the chineses medicine u were given were herbs ???? So clearly Herbs do work right ???? Combined with massage but u also said it didn’t work for u
Hi Kerrie,
Thanks for reading. There are other articles on here that I believe will answer your questions. But yes, chinese herbs HAVE worked very well for me combined with an extremely healthy plant based diet and enough exercise (mostly walking and hiking). But I took them for a few years and with a few different TCM providers. But there’s alot of detail here as I wrote these with the hope others can get the same results: https://fightlymphedema.com/how-to-get-chinese-herbs-to-treat-lymphedema/. Best of luck with it!
Thank you for the article.
Why did the tui na therapist tell you that you had so much scar tissue? Did you have many accidents that caused that?
can you elaborate what herbs you used?
Hi,
Yes, Ellen I would be interested to know that a well. Michelle
Hi Ellen (and Michelle),
So sorry, but I missed your comment System didn’t alert or I deleted it.
That is an interesting question because I had zero idea why I had all that scar tissue???? I had one accident in my early 20s where I had whiplash, but that’s about it. No hockey playing or anything 🙂 So I’m not sure at all. I discussed that with both the tui na provider (who was awesome but not great english as he was from Taiwan) and the TCM doc he worked with.
I have written about the herbs on other blogs and recently posted a few formulas in case that is helpful. But they are primarily custom made. But do check it out, I posetd some of them here:
TCM Formulas:
https://fightlymphedema.com/the-chinese-herbal-formulas-for-lymphedema/
More about getting herbs for lymphedema:
https://fightlymphedema.com/how-to-get-chinese-herbs-to-treat-lymphedema/
There’s a bunch more on the site too.
Thank you both for reading and sorry again Ellen for the delay.
Very Interesting. I developed this after having to be immobile for 8 weeks with a leg fracture. My legs and feet became swollen and I can’t get them normal. It hurts to walk because of the inflammation so it’s difficult to do my physical therapy to help my leg strength improve.
What caught my attention was one word from the acupuncturist – dampness. It’s correct that the herbs have to be specific to the person, but dampness is primarily from diet and anything we ingest. Thus knowing this, all sweets, breads, crackers, chips, too much salt, alcohol, cheese, fried foods, etc. are all going out the window. Vegetables, whole grains, and good protein sources are my plan. Thanks for the story. It gave me a path forward.
Hi Rob,
Thanks for your comment. You’re welcome! Since yours sounds very recent, you are really in the ideal situation…as lymphedema is reversible in its early stage, according to everything I’ve read. I’d also totally pay attention to minimizing inflammation. There’s alot out there on that too….starting with diet. Check out my blogs on diet, and there’s recent amazing research that adding fermented foods quickly helps minimize inflammation as well, which is an easy place to start. https://fightlymphedema.com/lymphedema-nutrition-fermented-foods/. Best of luck!